So it started out well and has continued to get better. I've gone to church for the past six Sundays in a row and it has giving me such a spiritual boost. I also made a few changes to my room by adding a DVD tower that spins so it can take up less room but hold my whole movie collection, a new bedspread and most excitedly, a picture collage. I made the collage on a very good day and so now when I see it reminds me of feeling well and optimistic. I put some pictures of myself that I love, some lovely quotes and a picture of the temple.
The bedspread is a little 80's floral. It actually reminds me of the wallpaper that was in my parents bedroom in our old house. I love it, it seems grown up, minus the stuffed animals haha.
Here's a close up of the collage. I like that its still open enough to add to and put up things that I want to envision for my life:)
This week I was able to go to an appointment with a doctor who sees a lot of other P.O.T.S. patients. There isn't actually such thing as a P.O.T.S. specialist but he is the closest you can get to it. Since he has so much experience with other people dealing with my same illness I was excited to see what he had to say. The appointment went well and he gave me a more in-depth explanation of P.O.T.S and how it works, or rather doesn't work. He had some new ideas about what to do and explained why I really do need to follow through with other ideas. One thing that I'm not exactly excited for is raising the head of my bed eight inches. It puts my bed on a significant slant and isn't very comfortable for sleeping. I've tried it once before but I hated it so much that I gave up and had dad put it back flat. Dr. Colby explained that having it on the slant will force my autonomic nervous system to work out through the night which also explains why it was so difficult to sleep like that. So instead of getting to lay down, rest and go to sleep, my body is still working hard trying to bring blood up from my feet to my head. I'm trying to have a good attitude about it but honestly I've been a grumpy mess. I don't know if people (including myself) realise how hard it is to live with someone who has a chronic illness; throw in a lot of irritability and it becomes pretty impossible. I am going to try my absolute best to follow doctors orders and at the same time not be too grumpy. It helps that the plan sounds hopeful. I feel like doing all the things at once may help, so I'm really excited about that.
Other than all that I've been knitting and playing the guitar. Playing the guitar has been so therapeutic and I love it:) It's been awhile since I've been able to sit up long enough and sing along as I play, its another way that I'm proving to myself that I'm getting better!
This week I was able to go to an appointment with a doctor who sees a lot of other P.O.T.S. patients. There isn't actually such thing as a P.O.T.S. specialist but he is the closest you can get to it. Since he has so much experience with other people dealing with my same illness I was excited to see what he had to say. The appointment went well and he gave me a more in-depth explanation of P.O.T.S and how it works, or rather doesn't work. He had some new ideas about what to do and explained why I really do need to follow through with other ideas. One thing that I'm not exactly excited for is raising the head of my bed eight inches. It puts my bed on a significant slant and isn't very comfortable for sleeping. I've tried it once before but I hated it so much that I gave up and had dad put it back flat. Dr. Colby explained that having it on the slant will force my autonomic nervous system to work out through the night which also explains why it was so difficult to sleep like that. So instead of getting to lay down, rest and go to sleep, my body is still working hard trying to bring blood up from my feet to my head. I'm trying to have a good attitude about it but honestly I've been a grumpy mess. I don't know if people (including myself) realise how hard it is to live with someone who has a chronic illness; throw in a lot of irritability and it becomes pretty impossible. I am going to try my absolute best to follow doctors orders and at the same time not be too grumpy. It helps that the plan sounds hopeful. I feel like doing all the things at once may help, so I'm really excited about that.
Other than all that I've been knitting and playing the guitar. Playing the guitar has been so therapeutic and I love it:) It's been awhile since I've been able to sit up long enough and sing along as I play, its another way that I'm proving to myself that I'm getting better!
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